Craniosynostosis Resources

Here are some resources for those of you who want or need to do more research on craniosynostosis. For anyone else going through this, my best wishes to you for a speedy recovery and a healthy child.

FACES: The National Craniofacial Association

NINDS Craniosynostosis Information Page

Children's Craniofacial Association

CAPPS

Children's Hospital, San Diego - this is where Gage's surgery was done. Drs. Cohen and Meltzer are wonderful!

Cranial Technology - These are the folks who make the DOC Band helmet. A wonderful company.

 

More About Scaphocephaly/Craniosynostosis

The DOC Band® Helmet
This is what does the shaping of your baby's head after the surgery. Believe it or not, my son missed it once it was gone.

Head Casting Pictures
Watching my son get his head cast was so hard yet so fascinating! You never know if your child will be calm about the process or not.

Scaphocephaly Pictures
Pictures of my son before and during treatment for scaphocephaly.



Copyright © 2003-2017 Stephanie Foster unless otherwise indicated

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