Scaphocephaly/Craniosynostosis Pictures
Before and After Surgery

Here are some pictures of Gage before his surgery. As you can see, his head is very narrow and rather elongated, but otherwise, he looks just fine.

Front view of child with scaphocephaly/craniosynostosis

Top view of craniosynostosis

Side view of scaphocephaly

Immediately after the surgery, there was some definite swelling, but nothing serious. Maybe it's the mother in me, but I can't help but think he looked cute even in his bandages.

After scaphocephaly surgery, front bandaged view After craniosynostosis surgery, side bandaged view

The sutures are definitely not the prettiest site I've ever seen, but it was still wonderful to have the bandages off. The scaphocephaly is still quite evident, but that will be true until after the helmet surgery, and I understand he is likely to always have a somewhat narrow head, but it will not be so obvious as it would have been without surgery.

You can see the two incisions best in the top view. There's one near the forehead, and one, somewhat harder to see, toward the back of the head. It amazes me that they don't have to shave his head for this kind of surgery, but I understand that's not so uncommon anymore.

After craniosynostosis surgery, the sutures After craniosynostosis surgery, the sutures, top view

I'll add pictures as the helmet therapy gets going so the changes over time are evident. Here's a picture of Gage the day he got his helmet.

We eventually went through two helmets, and decorated each quite differently. The first we put his handprints on the front, and his sister's on the back. The second I bought some stencils and did a space theme.

DOC Band helmet painted with handprints
DOC Band helmet with space theme


More About Scaphocephaly/Craniosynostosis

My Experience with Scaphocephaly
It's such a shock to have your child diagnosed with a problem that requires surgery to repair... especially when you're talking about on an infant.

Craniosynostosis Surgery
This is where things got serious. There are few things in life as difficult as watching your infant go in for surgery.

Craniosynostosis Resources
Great places to learn more and get support as you go through a difficult time. Watching your baby go through all of this is difficult but understanding the problem and meeting other parents who understand can really help.

Copyright © 2003-2018 Stephanie Foster unless otherwise indicated


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